Cystic fibrosis not dating each other
To avoid fumbling through the conversation uncomfortably, practice giving your friend important facts about CF.
You don’t want to overwhelm your new partner, so asking a friend to give you feedback on what sounds most intimidating may help you adjust your approach or even tweak the initial introduction of your diagnosis. Revealing [too much] too soon may unfortunately define you before your date has gotten a chance to really get to know YOU.
Rich struggled during her recovery from a double-lung transplant so Faraone created a video containing positive messages from other CFers to encourage her. Potential topics for future podcasts include friendships in and out of the CF community, transplants, CF care ethics, drug development, balancing chronic illness with work, and keeping motivated to exercise.“I see this as the late night talk show of the CF world,” Esiason says.
“Ideally, I’d love for this to eventually talk about things outside CF and include all areas of chronic illness and rare disease.”“It is fun and real.
A person’s acceptance or non-acceptance of the condition is not about judgment of you.
Many people consciously or subconsciously create boundaries, based on previous experiences, such as having difficulty with the loss of a family member whom struggled with illness or their own fear of uncertainty for the potential future of the relationship.
Remember, each person will react differently, so display comfort and acceptance of your condition, as opposed to mirroring your new partner’s potential unwanted reaction.
You can follow-up with something like, “I don’t see this as something that defines me, and if I need help, please leave it to me to ask.” Know when to give your partner space.
Because of this, logistically, we have to acknowledge that when we engage in closer, intimate relationships – these people now become part of our support system and ultimately have to learn about and understand what we need to do to maintain healthy outcomes.
Each person’s decision as to when and how to include their partner is quite individualized.